On March 17, 2010, it will be exactly one year that my husband and I first learned that our infant son, Gunner, had cystic fibrosis (CF), a life-threatening genetic disorder.
When I look back on this year, it has been an exhausting, emotional roller coaster. One that has tested myself, my husband, and my family spiritually, emotionally, and financially. There are so many unknowns still as to how severe Gunner's disease will be, how he will respond to treatments and if he will need that feeding tube in a couple months, and how my marriage will endure.
However, one thing is absolutely certain, I have the most beautiful, loving, and wondrous child. I couldn't help but include a picture for you to see just how perfect he is.
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She goes on to say:
...Ethicists and physicians perform cost-benefit analysis' of expensive yet exhaustive pre-natal testing compared to bringing a child into the world who will have a challenging life and cost thousands in medical care.
One theme is apparent; unlike with cancer where we are "racing to a cure," these scientists offer hope that we can eliminate diseases by terminating those with them. An AP article yesterday, on February 17th, headlined, "Testing curbs some genetic diseases." Couldn't the article title have been, "Testing snuffs out those with genetic diseases?"
I am not angry at the AP writer for the writing the story as I was excited for finally someone has admitted that genetic testing is killing little girls and boys like Gunner.
- 3 votes
As Christians, what is our ethical duty in this debate? What should pastors and priests counsel the expecting mothers in their congregation?
These are her real questions. Her faith tells her that using genetic testing is against God's will. My belief is that if she chooses to go down that road, more power to her, but keep your @!$%#ing faith out of my life decision whether or not to bear a child that is severely mentally and/or physically handicapped.
I have never been in that position and do not envy any parent that is. I know for myself, at this moment, I am mentally and emotionally incapable of bearing a child with severe disabilities. CF, though, is a different entity in my mind. Anyway, I digress. So, in a case where a woman will bear a child with severe deformities, etc, and she isn't capable of raising that child? Is she supposed to give birth and let the state raise it in some institution or put it in foster care where the likelyhood for abuse is extremely high? I think not. But hey, that's just me.
- 2 votes
Is she supposed to give birth and let the state raise it in some institution or put it in foster care where the likelyhood for abuse is extremely high.
I would disagree with the notion that death is an appropriate way to avoid abuse.
- 4 votes
Perhaps. But the bottom line is if I, as a mother, choose to abort due to the fact that the child I'm carrying has a severe mental or physical handicap, than I should be able to do so.
- 1 vote
“Testing curbs some genetic diseases.” Couldn't the article title have been, “Testing snuffs out those with genetic diseases?"
- 1 vote
However, one thing is absolutely certain, I have the most beautiful, loving, and wondrous child. I couldn't help but include a picture for you to see just how perfect he is.
As a Christian I would NEVER judge another persons decisions in life. My beliefs are that we are, as individuals, judged by our God in His own time. Despite their hardship, they love and treasure their child.:-)
I have thoughts of the science of this.... I just don't understand enough to make a comment on it. It doesn't sound right though in my mind.
- 3 votes
Thank you for your comment, Mrs. D.
This article is interesting in that it points out that rather than working to cure certain ailments, we simply kill those who have them.
Imagine if that were the route we had taken with something like AIDS. Can you imagine the outrage (and justifiably so)? Eliminate diseases by killing those who carry them.
- 3 votes
Piper... I've had cancer. I would not like to be taken out of the game before I got started. Hmmm... I see now more of what the article is stating.
- 4 votes
Mrs. D,
The world would have been a much poorer place without you in it. :-)
- 3 votes
“Testing curbs some genetic diseases.” Couldn't the article title have been, “Testing snuffs out those with genetic diseases?"
This touches on the core of the whole problem. It's much easier to do harm to another person when you've dehumanized them.
- 5 votes
Hence the constant insistence on calling the unborn "fetuses" instead of pre- or unborn humans.
- 4 votes
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